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Harare, Zimbabwe (News of the South) – World
Chronic Fatigue Syndrome Day is observed on May 12. Chronic Fatigue Syndrome is a devastating disorder that causes extreme fatigue, but the persistent fatigue doesn’t go away with rest or sleep.
It is characterized by severe disabling fatigue and a combination of symptoms including self-reported impairment in short-term memory and concentration, sleep disturbance and musculoskeletal pain.
Chronic fatigue syndrome – is it real?
Sometimes, it can be difficult to talk to your doctor about the symptoms and the suffering these are causing you.
It may not be obvious to your doctor that you are ill, because outwardly you may appear to be healthy! Fortunately, now, it has been established that chronic fatigue syndrome is very real and a very debilitating condition.
“In my experience, CFS is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages,” said Dr. Daniel Peterson at a Research and Clinical Conference, Fort Lauderdale, Florida.
“My H.I.V. patients for the most part are hale and hearty thanks to three decades of intense and excellent research and billions of dollars invested.
Many of my C.F.S. patients, on the other hand, are terribly ill and unable to work or participate in the care of their families.”
Similarly, during a lecture on Chronic Fatigue Syndrome at Stanford University on March 3, 2011, Dr. Jose Montoya, CFS researcher and clinician at Stanford University, said, “Hopefully one day, my dream is that our medical community will produce a formal apology to the patients that—not having believed them all these years—they are facing a real illness.”
It is now accepted that in CFS, the level of functional impairment is equivalent to that of multiple sclerosis, AIDS, kidney failure, chronic obstructive pulmonary disease, and a few other severe medical conditions.
So much so, the Institution of Medicine in the US came out with a new name for the syndrome –Systemic Exertion Intolerance Disease (SEID), and the new definition requires four symptoms: [1]
– substantial reduction or impairment in the ability to engage in pre-illness levels of occupational, educational, social, or personal activities
– post-exertional malaise
– unrefreshing sleep
– at least one of the two following symptoms: cognitive impairment or orthostatic intolerance (that is, developing symptoms, such as lightheadedness and dizziness, when standing which are relieved when reclining).
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